Staying off meds has been hard. (In case you don't know what I'm talking about, read the previous post.) My neuro uses a ten-point pain scale, so I will use that here. Usually for anything over a 3, I'm popping over-the-counter meds, like advil, extra strength tylenol, or excedrin migraine (tylenol/aspirin/caffeine). If my pain level gets up to 6-7, I take prescription migraine meds. I almost never get to 9 (which includes vomiting) anymore, because of triptans. And I've only made it to 10 (worst headache you've ever had, medications ineffective, trip to the ER/outpatient clinic) a couple of times in the twenty+ years that triptans have been available.
So not taking any meds means I've spent quite a few days out of the past two weeks feeling like crap, including one headache that made it to 9. But also, several days when I've felt pretty good. The thing that has been confusing is that it hasn't been a consistent improvement. I was expecting that there would be a few bad days, but then--it seems to my non-medical, totally biased brain-- if the problem really was rebound headaches, once I got through a few really bad days, there would be a steady improvement. Maybe not fast, but over the space of a week or two, I would steadily feel better.
But that has not been the case. The first few days were surprisingly pain-free, nothing over 0-2. Most days since then, I've had a headache. About ten days in, I had a 7-8 pain level day when I also had a couple of commitments that I couldn't miss. On that day, I took my usual prescription meds, and later in the day, one advil. But other than that one day, I haven't taken any pain medications at all for 15 days. I've had 4-5 days of feeling pretty good (pain level 0-2), and on those days, I think, wow, this is working! This is great! But the rest of the time, I've had a headache. It's kind of discouraging. My in-house medical advisor tells me that if I really want to do this, recovery from rebound headaches can take quite a while. So I'm not giving up yet. I will go at least one more week, probably two.
Because I'm not feeling all that great, I haven't done the full elimination diet (and I may not). Here are the parts I am doing: no caffeine except morning cup of black tea, no alcohol, no almonds or raw onions, no bananas or raspberries.
Since I'm still feeling like crap--and its entirely possible that's from detoxing from the meds-- it's hard to know if any of that is helpful. Also, it's fire season in the west, so there are varying levels of smoke in the air, and that is a big trigger for me. It's supposed to start raining again in a few days so maybe at least I'll be able to eliminate that.
The only other thing to report is that I've been super tired. Zero energy. In case you can't tell, I'm feeling a little discouraged at the moment (my pain level as I'm typing this is 6-7). On the plus side, I'm very proud of myself for not taking meds because there have been moments when it was REALLY HARD. I didn't realize how often I was popping (over-the-counter) pills until I stopped doing it.
When I sat down, I had some other things I was going to say, but I'll save them for another time. We're headed out of town on Thursday and will be gone through the next week so I may not post again until we get back. Please send headache-free vibes my way.
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